OhioHealth MS Clinic Education Programs

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I had the opportunity to moderate MS education programs recently, sponsored by  the OhioHealth MS Clinic. I am a patient at this clinic and enjoyed being able to share my experiences as well as talk about ways we can get involved with our own MS care. I opened the program with my presentation on patient empowerment and shared ways people can be proactive with their health needs.

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The program included talks from members of the OhioHealth MS Clinic team of physical therapists, occupational therapist, social worker, incontinence therapist and of course Drs. Jacqueline Nicholas and Aaron Boster.  Dr. Nicholas talked about Women’s Issues in MS, with a focus on pregnancy and how women have a different course of MS than men.  Dr. Boster presented How MS is Like a Leaky Swimming Pool, incorporating a newer theory from Dr. Stephen Krieger on how MS might be different than previously thought.

Dr. Jacqueline Nicholas speaking on Women's Issues in MS

Dr. Jacqueline Nicholas speaking on Women’s Issues in MS

These programs are a new presentation offering from MS Views and News – they coordinated the details for the program (venue, reservations, meals, etc) and OhioHealth decided on the speakers and program content.  OhioHealth was the financial sponsor of the program.  No pharmaceutical industry dollars supported the program, but there was a small display area and the various companies were invited to participate and share their information in an exhibit area separate from the speaking venue.

Dr. Aaron Boster with MS Views & News founder Stuart Schlossman

Dr. Aaron Boster with MS Views & News founder Stuart Schlossman

 

 

 

 

 

 

 

 

 

 

A key point that was not just talked about, but demonstrated at these talks is OhioHealth has established a comprehensive MS care center.  What might that mean?  All the services we might possibly need as a person with MS are located at their center meaning we don’t have to travel to different sites for services – this includes:

  • Neurologists who specialize in MS
  • Infusion clinic staff, specifically trained for MS
  • Physical, occupational and speech therapists
  • Social worker knowledgeable on accessing services
  • Wheelchair/equipment fitting and repair workshop
  • Patient events on site
  • And more that I am overlooking

There were speakers from these areas and others who came to observe and also to support the programs.  Even Tisha, who handles the paperwork for patient assistance programs, came the second night to be a part of the team.  Even if they weren’t on the stage speaking, the team presence was in the room.

I am waiting to hear the results from the participant surveys that were distributed at each program, and how these programs may be improved.  It was an honor to be a part of this program and I hope the participants went home with new information and accepted the challenge to be engaged with their providers and with my favorite project iConquerMS™.

 

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Congratulations go out to Stuart Schlossman and the MS Views & News organization for facilitating a great program, and offering their services to clinics such as OhioHealth.  I hope other agencies will see the value in having the details of MS education programs handled by this group.

The program was presented on two nights at locations north and south of Columbus; there will be additional MS education programs sponsored by OhioHealth MS Center in locations west and east of the city in October 2016.  OhioHealth MS Clinic staff is forward thinking, wants to include more for the people they serve and deserve recognition for this great step in education all of us.

be well,

Laura

 

 

 

 

It’s All About MEE

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No, not me, but MEE – Motivating, Educating and Empowerment, which is the teleconferences theme for the Multiple Sclerosis Foundation.  You might already know I am a big fan of all the free programs made available in the MS community to help us to learn more.  You probably also know, I am a big fan of my MS neurologist, Aaron Boster, Ohio Health.  When you put the two together, I expect really great things.

December 8, 8:30-9:30 PM,  the MS Foundation is hosting a teleconference featuring Dr. Boster, who will speak on Technology to Improve the Treatment of MS.  At my last appointment, he hinted at new MRI imaging techniques for all of his MS patients that will not only look for lesions but also measure brain atrophy and I  hope he will speak about those advances.  That alone could take the entire hour, but I’m sure there are other technology advances he will address as well.

The MSF teleconferences are free, and you can join via phone and also view the presentation via the internet via these links:

Call 1-888-550-5602  then dial code 23441168 when prompted

To view the presentation, go to https://ccc.spiderphone.com/23441168

If you can’t make it Tuesday night live, MSF offers replays on their website  at https://soundcloud.com/ms-focus 

You might want to also check out the other great speakers they have hosted, including MS physical therapist specialist Herb Karpatkin, who did a teleconference last week on Maintaining Independence through Assistive Technology.  Unfortunately there is only the audio and not the slides and he talks about a lot of simple and inexpensive devices that might be useful to us.  A search on the internet will turn up many of these devices he talks about in this teleconference.  Note – it took a while but I finally found the controls for fast forward and pausing these sessions located at the bottom of the page and not at the top where there is a play only button.

As always, I encourage everyone to learn more about MS – the field of multiple sclerosis constantly changes and it’s up to us to educate ourselves.

be well,

Laura